Short Bio: Amanda Rose Adams, M.S., PMP, author of Heart Warriors, One Family Faces Congenital Heart Disease, combines her experience as a communicator with her passion to battle CHD. Amanda is the president of the Colorado Chapter of the Children’s Heart Foundation, is the founder of the nonprofit Hypoplastic Right Hearts, and has organized dozens of charity events, informational campaigns, and planned or participated in multiple medical education conferences for parents across the U.S.A. and has mentored and supported families facing CHD all over the world.
Long Bio: Amanda Rose Adams, M.S., PMP, author of Heart Warriors, One Family Faces Congenital Heart Disease, combines her experience as a communicator with her passion to battle CHD. Amanda is the president of the Colorado Chapter of the Children’s Heart Foundation, is the founder of the nonprofit Hypoplastic Right Hearts, and has organized dozens of charity events, informational campaigns, and planned or participated in multiple medical education conferences for parents across the U.S.A. and has mentored and supported families facing CHD all over the world.
After a several brutal battles for their son’s life, Amanda and her husband Jim still live in Colorado where they celebrate every day that their two children thrive rather than simply survive. Amanda is a passionate advocate for patient advocacy, transparent medical information, parent education, CHD research and awareness, and emotional support for families facing health crises of all kinds.
Amanda works by day as a technical writer and by night as a writer, blogger, and advocate for parents and kids fighting Congenital Heart Disease. She is working with a Northern Colorado Writers critique group on her second memoir, Lot 109, Tales from the Trailer Park about her paradoxical childhood split between a shabby trailer park on the plains of Northern Colorado and her education at a fiercely conservative Lutheran Day School where her parents and the children worked without pay in exchange for tuition.
