Please consider an interview with Amanda Rose Adams, author of Heart Warriors, A Family Faces Congenital Heart Disease for your February (Heart Month) programming. The US Centers for Disease Control states that 40,000 babies will be born with congenital heart disease (CHD) in 2012, and eight thousand of them will not live to see their first birthday in 2013. In September Secretary Kathleen Sebelius of the US Department of Health and Human Services (HSS) recommended perinatal infant screenings for CHD, now advocates in the individual states are advocating local legislation to enact this endorsement. With a diagnosis rate as high as autism, parents need more information about this common yet deadly disease. Your audience of women of childbearing age as well as potential grandparents will want to know:
- What the typical risk factors are for CHD and what might elevate risk.
- What expecting parents can do to ensure proper prenatal and perinatal screenings.
- What to do if your child is diagnosed with a Congenital Heart Defect.
- How CHD is different from adult heart disease.
- What advocates are doing to improve the survival and quality of life for our most vulnerable citizens and how they can help us.
Heart Warriors contains not only Amanda Rose Adams’ harrowing tale of raising a child who faced twelve heart surgeries before kindergarten but a field guide for other parents facing similar complex congenital heart defects and useful tips for family and friends who want to support those facing CHD. Adams has appeared in the media and given speeches for groups of ten to then thousand on behalf of the American Heart Association, Hypoplastic Right Hearts, and the Children’s Heart Foundation. As an informed advocate and thought leader in the CHD community, Adams is a confident and helpful guest who will inform and inspire your audience.