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Category: Advocacy

Respect the Experts: Part One

When I started to write this post it became really long. I decided to break it up into parts so I could cover the ground without wearing out the reader. This first part is about the seriousness of critical congenital heart disease (CCHD).  To put it bluntly, I now know hundreds of parents whose children have died from CCHD, and yet the general public (including friends and extended family of those facing CCHD) doesn’t seem to understand what it cannot see.  Subsequent posts will cover complexity, prognosis, and the social… Read more Respect the Experts: Part One

My Wait Problem . . .

Almost two weeks ago I noticed my left leg didn’t want to support my weight, worsened by uneven numbness in both of my feet.  Random numbness in my hands, feet, and occasionally my face is not, I’m sad to say, a new sensation.  This has been going on since I was sixteen.  I got my first migraine when I was seven. . . good times.  But the leg feeling like it’s wrapped in thick rubber bands thing is new.  I didn’t DO anything to my leg.  If I had I… Read more My Wait Problem . . .