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Category: Advocacy

Preaching to the Choir

As I mentioned in a recent post (What I Need Now) a good half of my Facebook Friends are CHD survivors, parents, etc. and as predicted my Facebook feed is lit up with red awareness reminders.  It’s a little overwhelming to see the same thing over and over and over again.  I did repost this awesome story of a Heart Warrior’s role in the Super Bowl, but so did almost everyone in the Heartland. I wish the people who know nothing about CHD knew, when they see this adorable boy… Read more Preaching to the Choir

An Open Letter to Shaun White

Edited – 12/7/13 – If you’re going to invest the time to read this blog post, please also make time to read this one or read this one first because it’s more recent. In an effort to curb traffic for such an old post, I’m moving the original letter to the “What We Talk About” post. If you really want to read it, it’s an appendix to the good/new stuff.  

The Gift of Life

Dear friends, if you live in Colorado, please pull out your driver’s license and see if you have a ♥ on it. If you do, Congrats! You ARE and organ donor ((((FEEL MY LOVE)))). If not, please go here and register to be a donor: http://www.donatelifecolorado.org/index.php?page=12 Then feel more of my love. My friend Angela  Scott’s little girl Addison just got a new heart this week and a second chance at life. She’s three years old. The child who gave her his/her heart probably saved several lives as he/she lost… Read more The Gift of Life

Politicians, Doctors, and Nurses: All in the Same Day!

Politicians: I took the day off work today to attend an advocacy training at The Children’s Hospital Colorado (they are awesome)! and learned all about how congress people have to balance the party, the constituents, and the politics of decision making.  While it didn’t make me all that  sympathetic to politicians, it did make me wiser about how to communicate with them about children’s health issues.  Also, PLEASE make sure you’re registered to vote since children cannot vote for themselves! Doctors:  I heard five amazing doctors speak to a crowd… Read more Politicians, Doctors, and Nurses: All in the Same Day!