Skip to content

Category: CHD (Congenital Heart Disease)

Respect the Experts: Part One

When I started to write this post it became really long. I decided to break it up into parts so I could cover the ground without wearing out the reader. This first part is about the seriousness of critical congenital heart disease (CCHD).  To put it bluntly, I now know hundreds of parents whose children have died from CCHD, and yet the general public (including friends and extended family of those facing CCHD) doesn’t seem to understand what it cannot see.  Subsequent posts will cover complexity, prognosis, and the social… Read more Respect the Experts: Part One

Memories: Why I Can’t Love Mothers Day

I’m going to come right out and say it – Mothers Day is not my favorite holiday.  It has absolutely nothing to do with the holiday itself, and I don’t resent anyone else enjoying it. It’s just hard for me.  Sorry, Mothers’ Day, it’s not you, it’s me and my insanely powerful memory. I remember the birth dates of most of my fifth grade classmates.  Don’t ask me why; I don’t know.  They just stick.  I call it the Ken Jennings gene, and I’ve got it bad.  I remember the… Read more Memories: Why I Can’t Love Mothers Day