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Category: CHD (Congenital Heart Disease)

Life on Pause

I spent a good twenty minutes on the phone with Liam’s cardiologist tonight.  Primarily, I wanted to: Verify that nasty old Holter monitor is coming soon (it is). Determine what ye olde doctor will be looking for to make the decision about the pacemaker and when. Figure out if he decides not to move ahead, exactly how paranoid I need to be for the next six months waiting to do it again. So, the Holter will be here soon, and Liam will wear it this weekend.  Doc’s looking for “pauses”… Read more Life on Pause

Why May 12 Matters so Much to Me

I just got home from the Barnes and Noble where I’ll be doing a reading/signing on May 12 (Mother’s Day Weekend).  This will be my fifth event around Heart Warriors since April 13, but in a way it is the most important to me.  Don’t get me wrong that awesome 80+ person crowd of old and dear friends on my birthday was AWESOME. The April 20 reading in Aurora was AMAZING. The Bookworm was such a funky, fun store, and the Grand Junction event was moving.  But this. . . this… Read more Why May 12 Matters so Much to Me

The Infamous Photo Post (best of)

Here is another retrospective post from my old blog. This was one of my more popular posts, and I figured I’d share it again.  I will mention this, I don’t do the Duggers.  I just don’t get it. I don’t care how many kids they have or any of that, and that’s just it I don’t have cable, and I don’t care. BUT, I was deeply offended by news stories that called them “weird” for wanting a picture of the baby they lost.  There’s probably a whole lot of reasons… Read more The Infamous Photo Post (best of)

Nine Years Ago My Life Ended and Began Again

Right now, on December 30, 2011, I am watching Liam with peanut butter all over his little freckled face gobbling up a sandwich.  Now he’s talking with his mouth full, peanut butter clinging to his new permanent teeth.  He’s moving on to the Cheese-Its and pineapple chunks.  Now, he’s teasing Moira and making her irritated.  Now, he’s clearing his plate, and he will wash his face and I will tell him when he comes back that he missed some peanut butter, because that’s what happens. Nine years ago right now,… Read more Nine Years Ago My Life Ended and Began Again

What a Week

I went to bed Tuesday feeling not great, but Wednesday morning I was sick.  Of course my sick was nothing compared to Moira’s sick – she’d been sick all over her bed.  So, while Jim got her in the shower, I did lots of laundry, empty her sick bowl several times and finally got a nap.  This was not the most difficult day of my week. On Sunday, someone who told me he would do something for me backed out, no reason, no apology, just no.  This was after a… Read more What a Week

Still So Lucky

Well, despite my two dollar donation, the Gods of Powerball did not answer my call.  So, I will continue to try to change to world my own way.  Would have been a lot easier with seventy-five million dollars. Last night, after dinner, a new Paul Simon song came on the radio.  The dude just turned seventy, and he’s still rockin’.  Liam loved it and he calls out from the back seat of the car, “Mommy I like this music!”  Oh, he is so my son, further proven by the fact… Read more Still So Lucky