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Category: Citizenship

Part 6 – Darn it, I’m not done

I have the worst cold tonight, but I just can’t sleep. After the five part series, many moms and friends asked for a succinct example to use to politely decline and discourage their schools from participating in Jump Rope for Heart.  One mom I’ve known a long time and is not my rebutter, raised two points about the AHA that I now must address. 1. AHA’s “other” research is important to all people including heart kids. Let’s start with 1 because it’s easy.  She’s right and I’ve never ever disputed… Read more Part 6 – Darn it, I’m not done

The Lay of the Heartland, Part Five: You Have Options

The last thing I want to add is that millions of Americans mistakenly think that the AHA has our kids covered, but we can see that both at the nonprofit and government level CHD research is sorely and dangerously underfunded.  It’s important not only that we as advocates know this but that we understand the limitations so we can motivate others to help us change things. Now I’ve said my peace about the American Heart Association.  Unless I see some massive reform movement from them, I’m pretty much washing my… Read more The Lay of the Heartland, Part Five: You Have Options

The Lay of the Heartland, Part Four: Frenemies

After my last two posts about my love affair and break up with the American Heart Association and my dislike for Jump Rope for Heart advertising CHD but not funding it, you might be on my side of this fence.  You might still be a huge AHA fan and nothing I say will dissuade you from your support, or you might be ambivalent because where else are you going to go for support? If you’re like me you’ll just walk away from the AHA, not try to work with them,… Read more The Lay of the Heartland, Part Four: Frenemies

The Lay of the Heartland, Part Three: Don’t Jump

I have a friend who might guest blog when she’s ready about working with the American Heart Association to change things at the local level and from the inside out.  I respect her perspective and have invited her to write about it here, but for me the worst of the worse for the the American Heart Association is Jump Rope for Heart. There are over 32,000 schools doing Jump Rope for Heart this year.  That means a conservative three million kids who are going to get messages about Congenital Heart… Read more The Lay of the Heartland, Part Three: Don’t Jump

The Lay of the Heartland, Part Two: It’s Personal

My Love Affair and Break Up with the American Heart Association Almost nine years ago, I was a brand new mom who just returned home from a journey to California to save my newborn son’s life with Liam’s first open-heart-surgery.  I saw that there was a heart walk in Denver and I wanted to go, but I was recovering from a brutal emergency c-section.  I planned to return the next year, but I was then nine months pregnant and Moira was born a week after the heart walk. I finally… Read more The Lay of the Heartland, Part Two: It’s Personal

The Lay of the Heartland, Part One: Under My Influence

This is a five six part series about how charitable money flows in and out of the Heartland and how I’ve chosen sides on this important issue.  This series is only intended to inform and inspire you to make up your own mind about how or if you want to be an advocate for CHD issues and how you want to do that. A few times in the past month persons I hold in high regard have accused me of having, are you ready for this . . . influence!” … Read more The Lay of the Heartland, Part One: Under My Influence

An Open Letter (Best Of Post)

Continuing with my “Best Of” series from my old blog, I wanted to re-run a very popular post from last year.  Please feel free to share this with others as its sentiment does not diminish but builds over time. —————————————————————— This is an open letter to the men and women of the CHLA CTICU and, in turn, to every professional performing services at every pediatric ICU the world over. Dear You, We, all of human kind, have gifts and limitations. For instance, I am not gifted with math skills, adequate… Read more An Open Letter (Best Of Post)

COLORADANS CLEAR YOUR CALENDARS – Morning FRIDAY FEB 24th!!!

You say you want a resolution? Well you know I got you covered! With help from Representative Fischer and Senator Boyd, the Colorado Board of Health, The Colorado Children’s Hospital, and The March of Dimes – and oh yeah me and heart mom Dawn Bent, the Colorado House and Senate will vote on a Resolution stating the critical importance of Congenital Heart Defects in the state of Colorado AND calling for pulse ox research to implement the best standards of care for our babies!!! Yes! It’s happening! It’s HAPPENING and… Read more COLORADANS CLEAR YOUR CALENDARS – Morning FRIDAY FEB 24th!!!