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I sometimes digest medical news, or the absence of it, with the metabolism of a large snake. In the past eight days I’ve spoken with Liam’s cardiologist, my dermatologist, my… Read more Indigestion . . . choking on facts and possibly taxes →
Heart Warriors was officially released on April 10th of 2012. It was entirely a coincidence that the book actually starts on April 10 of 2006. The beginning of the first chapter ends on April 12, 2006, seven years ago today. April 12th will never be an easy day for me. It was the only part of the book I found impossible to write in past tense. Those memories were ingrained in all of our hearts with scalpel and saw, sutures and suction. Today Liam and Moira had no school. To… Read more An Anniversary Excerpt →
I’m Rerunning This Blog Post as a A Best Of. I so admire Caroline for her spirit and her relentless fight against Cystic Fibrosis. We are Wyvern Sisters fighting for… Read more BEST OF November 2011 – Cause Warrior Caroline →
I follow the Huffington Post Parents Blog on Facebook. This is where I read about Emily Rapp and find other good articles and interviews. Today, there was an article about… Read more At the Edge of the Bubble →
I imagine you might see a post from me on your feed and think, “No! Amanda is posting another rolling in the deep missive about the reality that we’re all going to die and life is beautifully painful.” Yeah, I know, I’m the girl who thinks really deep thoughts. But alas, no! I’ve decided I need to give you poor beleaguered friends some fun, and since I’ve not one peeve I want to rant about in an open letter right now, I shall share our parental mission: Operation F-You Pickachu.… Read more Operation F’You Pikachu →
In my recent post (Hope Snorts) I wrote about how I’m coming to terms with all of my son Liam’s possible and probably futures including the real possibility of losing… Read more Compassion →
I had second thoughts about ever posting this. Jim and I talked about it. He agreed that it’s absolutely honest, but maybe too honest. We debated whether or not it… Read more Hope Snorts →
Tomorrow morning will be February 9, 2013. On February 9, 2005, at 7:00 am we were bringing Liam to preop for what we believed would be his last open heart… Read more Plan B →
Amanda Rose Adams 