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Tag: Awareness

Half-heart, Whole Body: Part Two, B-R-A-I-N-S

Recently, at the behest of our cardiologist, we met with a neuropsychologist who administered a great many tests and even called our son’s teacher for an interview. There was no recent trigger for this visit, other than my intense interest in the “Whole Body” health care approach to CHD and our recent trip to the Single Ventricle Survivorship clinic at Children’s Hospital of Philadelphia. The field of neuroscience is advancing rapidly, and the leading pediatric cardiologists are realizing that you can’t put a body on life-support multiple times during a… Read more Half-heart, Whole Body: Part Two, B-R-A-I-N-S

What I Need Now

When I was pregnant and distraught ten years ago, waiting for a tiny broken-hearted baby to break through my body and face surgery at best, death at worst, everyone in my life offered to do “whatever you need.” Ironically, I needed nothing. I had a surge of adrenaline that coursed through my veins and made me stronger than I ever thought I could be.  I was like the mother who lifts a truck off her underpinned child.  I needed space and time to get to a place before I could… Read more What I Need Now