My daughter turns twelve tomorrow. Today I went to a jewelry store with a silver charm that I received for my own twelfth birthday. The jeweler cleaned the charm and placed it on a new silver chain. The charm is round and reads “Grown Up Twelve.” But I was not a grown up at twelve and neither is my daughter. She may stop growing soon, like I did when I was ten, but we were both still little girls at twelve, despite looking like women well before our time. This… Read more grown up twelve →
Staying true to not writing about Liam’s personal life, I’m going to do my best to share only my feelings. Sufficed to say, Liam has never, ever liked Holter monitors, a documented historical fact, and it’s not gotten any better. The Holter monitor came back yesterday, it’s like a boomerang. For those not in the know, a Holter monitor is a smallish box that connects to five leads that are attached to the skin over the ribs and sternum, and Liam happens to be allergic to the adhesive in most… Read more G is for Graduation, H is for Holter →
Recently, at the behest of our cardiologist, we met with a neuropsychologist who administered a great many tests and even called our son’s teacher for an interview. There was no recent trigger for this visit, other than my intense interest in the “Whole Body” health care approach to CHD and our recent trip to the Single Ventricle Survivorship clinic at Children’s Hospital of Philadelphia. The field of neuroscience is advancing rapidly, and the leading pediatric cardiologists are realizing that you can’t put a body on life-support multiple times during a… Read more Half-heart, Whole Body: Part Two, B-R-A-I-N-S →
I didn’t write a blog post on the 26th. Instead, I took my children and one of their friends to a Hogwart’s Halloween Party that the city hosted. Last year… Read more Living Instead of Blogging Part One →
Every now and then I read a news story about how volunteering helps teens or war veterans deal with depression and stress. Here is some more information about how volunteering… Read more Goodbye Ruby Tuesday →
Nine years ago Jim and I closed on the sale of our townhouse. We moved in on a wet February day wanting a child we seemed unable to conceive, with… Read more Home →
Amanda Rose Adams 