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Tag: hypoplastic

Eleven

I wrote this on Facebook tonight. What a blessing it is to forget. Eleven years ago right now, I was drifting off on my very first overnight in a hospital, 22 hours later I would have a living child. 34 hours later we would chose for him: life or death with no guarantees of the former and plenty of opportunity for the latter. Eleven years ago, at this moment, on a Sunday night, I fell asleep on the precipice of the most precarious fall and meteoric bounce a mother could… Read more Eleven

Half-heart, Whole Body: Part Two, B-R-A-I-N-S

Recently, at the behest of our cardiologist, we met with a neuropsychologist who administered a great many tests and even called our son’s teacher for an interview. There was no recent trigger for this visit, other than my intense interest in the “Whole Body” health care approach to CHD and our recent trip to the Single Ventricle Survivorship clinic at Children’s Hospital of Philadelphia. The field of neuroscience is advancing rapidly, and the leading pediatric cardiologists are realizing that you can’t put a body on life-support multiple times during a… Read more Half-heart, Whole Body: Part Two, B-R-A-I-N-S

The Infamous Photo Post (best of)

Here is another retrospective post from my old blog. This was one of my more popular posts, and I figured I’d share it again.  I will mention this, I don’t do the Duggers.  I just don’t get it. I don’t care how many kids they have or any of that, and that’s just it I don’t have cable, and I don’t care. BUT, I was deeply offended by news stories that called them “weird” for wanting a picture of the baby they lost.  There’s probably a whole lot of reasons… Read more The Infamous Photo Post (best of)