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Happiest New Year!

Long time no write . . . We’ve been busy. Here’s the highlight reel: I’m trying to figure out the new WordPress layout it’s been SO LONG since I blogged. Jim graduated from college! He starts his new teaching job on Monday!!! Liam graduated from high school! Liam wrote a BOOK! I need to help him edit it, but I’ve been kind of busy with ye olde job. Moira has been modeling – she’s gorgeous! (All Moira professional photos are courtesy of Photography by Desiree – hire her!) No one… Read more Happiest New Year!

Chapters ? – Heart Warriors Reshuffle

The first a chapter is from the original Heart Warriors (2012) but I am rewriting it with new information and events. I’m not sure where this chapter (which will stay but maybe be shorter) will end up in the sequence. The second chapter is a preview from the new version of the book and deals with post traumatic stress disorder. I’d say enjoy, but a trigger warning is probably more appropriate. You’ll see how my writing style changed over a decade, but I wrote the trauma as purely as it… Read more Chapters ? – Heart Warriors Reshuffle

Not My Place to Say

Today was the third day at my new job. Monday was the last day at my old job. Other things that happened today: My friend had good news for me about a project we are collaborating on together. My other friend called for some support, and I was able to help her. Two of my oldest friends were in contact, one to tell the other her son had passed suddenly, and asking to pass the news to me. It’s not my place to talk about my friend’s loss, and I… Read more Not My Place to Say

The Poetry of Trauma

Twice in the past two months I’ve heard two writers, one a memoirist and the other a medical doctor say something like, “Only poets can write about trauma.” Seventeen years ago, my newborn baby had his first open-heart surgery. His chest could not be closed because his tiny heart was too swollen to fit back inside his rib cage. So, for days he survived in a medical coma, and we could not touch him. My body was still recovering, barely, from a violent emergency c-section, and not only could I… Read more The Poetry of Trauma

The Last Childhood Birthday

Liam turned seventeen today (well yesterday now, it’s after midnight). For those of you who know his story, I’ll let you absorb how huge 17 is. His next birthday he will legally be an adult. WOW! Seventeen years ago right now I was thrashing, crashing, getting multiple injections of epinephrine. I was delirious from blood loss and physical trauma. I didn’t know most c-sections take a little longer than 5 minutes. Mine took less than that – I was in an entirely different room trying to push my child out,… Read more The Last Childhood Birthday

Chronic Corona

For the first six years of my first child’s life we lived a rarified sort of life. Frequent isolation and social distancing was a fixture of his survival, and we accepted it as part of keeping him alive in a world full of hostile germs. Then he stopped having heart surgeries, until he was eleven, and then it was only the one, and we got . . . not sloppy, or careless, but carefree to an extent. He wasn’t on oxygen, he wasn’t between major surgeries or on major blood… Read more Chronic Corona

The Journey to Well

The inevitable events that led me to write Heart Warriors began on December 30, 2002, the day in my pregnancy when Liam was diagnosed. The earliest drafts were written in 2008 and promptly discarded. I’d never written a book before and didn’t know what I was doing. I joined some writing groups, read a ton of books, and finally started and finished the book very quickly in 2010, the same year I finished graduate school, fundraised for and attended our second Hearts United event, launched the inaugural Congenital Heart Walk,… Read more The Journey to Well