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Category: Uncategorized

Kill Your Darlings

Until two hours ago, I had almost 400 blog posts here that I’d written since late 2011. I deleted 171 of them. I’m not the same person I was last month, much less seven or eight years ago. I’ve changed in so many ways that I can’t even begin to explain in blog posts. I believe I’ve changed for the better, but no change is painless or easy. There are still well over 100 blog posts I’ve not deleted, please enjoy those while I rebuild my website and my life.… Read more Kill Your Darlings

Just a Dream

6 If I can stop on heart from breaking, I shall not live in vain: If I can ease on life the aching, Or cool one pain, Or help one fainting robin Unto his nest again, I shall not live in vain. ~ Emily Dickson, Book 1 — Life Friday morning I planned to swim, but just before the alarm sounded at 4:40 am I was lost in a dream. I was holding a lovely little dog, a puppy, who had a heart defect, and nothing could be done for… Read more Just a Dream

Doing the Hard Things

Happy New Year (27 days in)! I’m three months in to a full year Facebook fast, so my connection to the online world has been limited at best. Mostly, this time away has been great for my mental health and anxiety. Unfortunately, I’ve also had bronchitis for two of those three months, so I’ve not been in the best of physical health. I’m on the mend though, which is good because I’ve much work to do in Adamsland. 2019 is turning out to be the year of finishing hard things.… Read more Doing the Hard Things

The sun will come out tomorrow

Four years ago I wrote this blog post about eleven years prior. Tonight everyone in my house has a cold, except me. Tomorrow, well, tomorrow is the fifteen year anniversary of the flashpoint that initiated  the most most traumatic experiences of my adult life. I started a new job in October. Every morning I drive by the clinic where the events of December 30, 2002 unfolded, and I see the tree that I clung to while the sun was setting. Every night I drive back the same way, but I… Read more The sun will come out tomorrow

Seasons Change

Fifteen years ago this week, I learned I was pregnant for the first time. Fourteen years ago tomorrow, I founded a tiny Yahoo group of women with babies who were one in ten thousand, babies like mine, babies with only half a heart, without a functional right ventricle. Within a few years we incorporated as a nonprofit charity called Hypoplastic Right Hearts. In the last fourteen years we hosted three ground breaking medical conferences hosting cardiologists and surgeons who taught at UCLA, CHLA, Harvard, and Baylor Universities. We hosted panels of… Read more Seasons Change

The Lost Chapter

When I first wrote my book Heart Warriors, A Family Faces Congenital Heart Disease, its working titles was Informed Consent. I revised more than 60 drafts of the book before it was accepted for publication and a few more after that. The book that was published lost several chapters and paragraphs along the way and found new ones. Today is the 27th of April, 2017. The original first chapter of my book took place reflecting on the 27th of April in 2002 and in 2003. Fifteen years ago tonight I… Read more The Lost Chapter