While it Lasts

This has been a most interesting week. My book Heart Warriors, A Family Faces Congenital Heart Disease went on sale Wednesday for $1.99, and by the end of the day my book was in the top 15 of all kindle biography and memoir titles. Then the next day came and I expected the rank to … More While it Lasts

Eleven

I wrote this on Facebook tonight. What a blessing it is to forget. Eleven years ago right now, I was drifting off on my very first overnight in a hospital, 22 hours later I would have a living child. 34 hours later we would chose for him: life or death with no guarantees of the … More Eleven

Half-heart, Whole Body: Part One, A Poster Child Retires

During my first pregnancy my son was diagnosed with congenital heart defects that were “incompatible with life.” Through the following years of multiple open-heart surgeries and other invasive surgical procedures on and around his heart, I was very open about his medical history because I wanted and needed to be understood. I needed people who didn’t … More Half-heart, Whole Body: Part One, A Poster Child Retires

It Was a Monday

I am not sleeping, so I will write.  Tonight (which is now yesterday) at dinner, Liam asked, “Do you know what today is?” and Jim and I looked at each other, just briefly, before I asked Liam to tell us what today is.  “It is the last Saturday of the year, and the last day … More It Was a Monday

Love Your Library and Your Heart Community

As we reach the pinnacle of thankfulness and begin our roller coaster drop into 2014 beginning with Black Friday, I’m asking you to give the gift of  Heart Warriors: A Family Faces Congenital Heart Disease  to your community by requesting it from your local library. You can find your closest library through this link: http://www.publiclibraries.com/More Love Your Library and Your Heart Community

Day Thirteen: A lighter shade of pale, or when you’re glad it’s a virus

Liam requested chicken noodle soup for dinner.  Liam doesn’t like soup.  Liam came to dinner holding his stomach and didn’t eat his soup.  Liam went to bed at 6:00 pm with the giant popcorn bowl, a kiss, and a temperature check.  His average body temperature is barely 97 degrees on a good day. He’s about … More Day Thirteen: A lighter shade of pale, or when you’re glad it’s a virus