I’ve never read The Hunger Games, or The Fault in Our Stars. It’s not that I’m dismissive of young adult (YA) literature, it’s just not my thing. I also don’t read westerns, mysteries, science fiction, or most fantasy, but I do read the news and couldn’t miss the frenzy over The Fault in Our Stars film and author John Green. I was curious about the title because I’d read that it was from a Shakespeare play, so I looked it up. The source quote is from Julius Caesar and about… Read more The Fault in Our Hearts →
This has been a most interesting week. My book Heart Warriors, A Family Faces Congenital Heart Disease went on sale Wednesday for $1.99, and by the end of the day… Read more While it Lasts →
Staying true to not writing about Liam’s personal life, I’m going to do my best to share only my feelings. Sufficed to say, Liam has never, ever liked Holter monitors, a documented historical fact, and it’s not gotten any better. The Holter monitor came back yesterday, it’s like a boomerang. For those not in the know, a Holter monitor is a smallish box that connects to five leads that are attached to the skin over the ribs and sternum, and Liam happens to be allergic to the adhesive in most… Read more G is for Graduation, H is for Holter →
I wrote this on Facebook tonight. What a blessing it is to forget. Eleven years ago right now, I was drifting off on my very first overnight in a hospital, 22 hours later I would have a living child. 34 hours later we would chose for him: life or death with no guarantees of the former and plenty of opportunity for the latter. Eleven years ago, at this moment, on a Sunday night, I fell asleep on the precipice of the most precarious fall and meteoric bounce a mother could… Read more Eleven →
During my first pregnancy my son was diagnosed with congenital heart defects that were “incompatible with life.” Through the following years of multiple open-heart surgeries and other invasive surgical procedures on and around his heart, I was very open about his medical history because I wanted and needed to be understood. I needed people who didn’t know anything about CHD to know about it. I was living through something I never expected when I longed to be a mother. What came of that was a connection with others living the same… Read more Half-heart, Whole Body: Part One, A Poster Child Retires →
I am not sleeping, so I will write. Tonight (which is now yesterday) at dinner, Liam asked, “Do you know what today is?” and Jim and I looked at each… Read more It Was a Monday →
Liam requested chicken noodle soup for dinner. Liam doesn’t like soup. Liam came to dinner holding his stomach and didn’t eat his soup. Liam went to bed at 6:00 pm… Read more A lighter shade of pale, or when you’re glad it’s a virus →
My friend George died on April 29th. I wrote most of this post on May 1st, but it seemed too soon. I left it here in my draft folder and… Read more My Friend George →