Recently, at the behest of our cardiologist, we met with a neuropsychologist who administered a great many tests and even called our son’s teacher for an interview. There was no recent trigger for this visit, other than my intense interest in the “Whole Body” health care approach to CHD and our recent trip to the Single Ventricle Survivorship clinic at Children’s Hospital of Philadelphia. The field of neuroscience is advancing rapidly, and the leading pediatric cardiologists are realizing that you can’t put a body on life-support multiple times during a… Read more Half-heart, Whole Body: Part Two, B-R-A-I-N-S →
I am not sleeping, so I will write. Tonight (which is now yesterday) at dinner, Liam asked, “Do you know what today is?” and Jim and I looked at each… Read more It Was a Monday →
My friend George died on April 29th. I wrote most of this post on May 1st, but it seemed too soon. I left it here in my draft folder and… Read more My Friend George →
UPDATED: April 3, 2014 – What it looks like now. I wanted to tell all the lovely people who found this post because they too were facing a Mohs procedure… Read more Mohs better lip: lots of swelling, no more carcinoma – updated with stitches →
April is a strange month. This April we had twenty-two inches of snow in less than two days. April is full of birthdays, memories, and taxes. April is the time… Read more Seasons Change →
I’m Rerunning This Blog Post as a A Best Of. I so admire Caroline for her spirit and her relentless fight against Cystic Fibrosis. We are Wyvern Sisters fighting for… Read more BEST OF November 2011 – Cause Warrior Caroline →
I had second thoughts about ever posting this. Jim and I talked about it. He agreed that it’s absolutely honest, but maybe too honest. We debated whether or not it… Read more Hope Snorts →
Eight days ago, I attended my 20 year high school reunion. It was good to see old friends, but I found I am an entirely different person than I was… Read more The Shape and Texture of a Decade →
Amanda Rose Adams 